‘Hold on to me!’ He said with some urgency.
So I did. More tightly than I could remember doing in any of the previous five years. Then I wept some more, thus continuing the pattern of virtually every day for the last four weeks.
I am at a loss to really explain to Wobbles what is going on. I feel fearful. I find it hard to imagine better times. I cannot seem to control my emotions. I am more anxious than I can ever recall.
There is worse still. I think I have reached that place I never thought I would. What does a breakdown look like, I wonder. Why can’t I just keep it together?
After all these years – and I include those ones long before ART entered the fray – the ones that can only be remembered, and so are best forgotten, for the severe depression that became my closest associate.
Wobbles reassures me constantly. Telling me not to worry about anything else than just finding a way through each day. It feels like an unfair burden on him. Like usual, he is not complaining.
Would it be too much if I said nothing is going well at the moment?
Is it unexpected that I find myself looking into territories of despair previously unchartered?
Can there really be any point to anything anymore if nothing makes sense?
What if there is worse to come? Worse than those years of major depression already past?
Why does the thing that upsets and hurts me the most have little to do with lost babies or a future without children?
These weeks since Black Friday have been long. Longer than any of the longest days in the years of ART before this event.
Sometime since, I managed to stop feeling complete shock over our news. I was distracted by physical pain and uncertainty. Eventually I let go of my feelings of abandonment and frustration over the clinic. Two weeks after Black Friday, I was sent for another ultrasound. The clinic making a late decision that perhaps some things needed checking on. Their complete lack of guidelines in what to expect was annoying. The weekly ‘We’ll just have to wait and see’ conversation became maddening.
Despite that fleeting moment as ‘dildo’ cam made entry of thinking ‘maybe it has all been one horrible mistake’ I was shown to have a clear uterus. I was not retaining any of the ‘products’ of pregnancy. I began to wonder if Baby Wobbles had ever existed at all. For if he ever was, he had not left any evidence behind.
After my umpteenth blood test, I stopped making those regular pilgrimages to the clinic’s pathology outpost. I despised having to hand in slips with the tell-tale “falling HCG level” diagnosis. While I did not chose to stop going, after my last result of a HCG reading of 11, I found it hard to leave the house. Each day I planned to leave early in the morning for that last test, but somehow never made it. After a while, it just seemed pointless. Perhaps I was avoiding final confirmation of could no longer be denied?
There were practical considerations pressing on me. The essay I was racing to finish on Black Friday became a stark reminder of the ‘before’ and ‘after.’ I was a few hundred words from having a completed essay that day. Once the news came, I downed tools and it has been very hard to pick them back up again. Then I felt I was working for our future. Now I feel, once again, completely adrift and overwhelmed.
For more than a year our usual lives, including our IVF efforts, have been dominated by the increasingly malevolent external forces of Other Stuff. I will go back and continue write those password protected blog posts, if only for my own sanity. For now events are still very raw.
I had foolishly consoled myself that our second pregnancy would be our reward for enduring this. That it would keep me sane during the worst that could happen. For a while, there had been a belief that these things would end soon. I realise now I had clung onto that suggestion for dear life. It was not to be. We were barely a week post-loss when it all kicked off again, and took a turn down some even nastier hate-filled streets. None of it makes sense, as the psychologist I began seeing soon after this all began reminds me often. I should avoid trying to apply my own concepts of decency and fairness to a situation that involves none of those elements. He decided early that these events had caused a traumatic stress disorder in me, probably as it echoed dramatic events from my early life. I tend to agree with him. Why else would I wait until now to fall apart and lose the ability to cope with the things over which I have no control?
As Other Stuff shifted course in ways never predicted, I feel despair knowing that these things could go on for much much longer. Over twelve months worth has almost been my undoing. I do not see myself surviving another extended period of the same. Worse is the thought it will get nastier. It is like some vile self-fulfilling prophecy. Every time I have uttered the words: ‘Well, at least it cannot get any worse than this!’ it does. One year was my imaginary cut-off point, and as it turned out, we were denied the right to exit the situation. Really damned if you do. Still damned even if you don’t.
Wobbles as usual is rock-solid. I’ve been unable to make new appointments with my semi-retired psychologist, who can be difficult to track down. I see it as his job to pick up a bit of the slack, so Wobbles does not need to be constantly on the receiving end of my despair. My history of physical medical conditions that relate to my emotional state have reappeared just to ensure the misery is complete. The main issue now is my great areas of weeping, odorous, itchy and bleeding areas of eczema and psoriasis. On its own, it can be enough to drive me to distraction. Heaped on top of what has now become standard daily life, it is just one more aggravation.
Somewhere in these weeks I again sensed myself having that same horrible thought I had about the same time last year; maybe it is best our baby did not survive….what would he have been born into? The rest of the time, I wonder if indeed we are being punished for being the ‘bad’ people events are suggesting we are? Why we even had to officially document our loss as part of this mess. This fact feels like the ultimate indignity. Other Stuff has previously humiliated us over our quest to have a family of our own. It is not a nice feeling at all.
I vaguely wonder about IVF sometimes. My usual conclusion being that even if there was the money and personal strength required to undertake an 11th cycle, conditions would be far from ideal to conceive. Sure, people like to say even third world women living in famine can conceive. I just do not imagine surviving the guilt I would feel about a third loss. I have seen enough to know I would always blame my own stress over Other Stuff for things not continuing. I have enough issues over Other Stuff to not want to completely link our own world of IVF and trying to conceive with this ugliness.
If we were to enter into a deliberate (as opposed to all those accidental ones) ART hiatus of twelve or so months, what would be the consequences? We would be even more older than we were before. Our hopes will be that little bit more faded. I will be even more tired than I am now. Will Other Stuff be over and if so, would I have recovered sufficiently?
Why are answers becoming so hard to find?






I can’t imagine the torment you must be in, with history, health, fertility and depression all tied up in Gordian knots. There will come a time when you will see one little end that can be picked at and unraveled, bundled up and tucked away – leaving a slightly smaller ball of pain.
Only you and your beloved can come to a decision when/if to stop pursuing a born baby (as opposed to an adopted one). That decision will be a biggie. We are all hear to listen and hope with you.
Oh Lifeslurper you sound so terribly sad and despondent,I wish I could think of something to say that would help you, but I can’t, except that I am so sorry that you have to endure this and I hope that at least other stuff ends soon, Hugs
OMG – I just typed ‘hear’ instead of ‘here’
So sorry to hear that everything is such a mess for you Lifeslurper.
Sounds to me like you need a lot more support than a semi-retired psychologist at the moment! Nobody could go through what you have been through at the moment without it becoming too much to bear. Is it possible to get yourself to a sympathetic and supportive GP (yes I know that can be hard to find!) who can refer you to a professional that can help you through this?
Take care of yourself and tell Wobbles to take care of himself too.
BTW – if you don’t let me come and visit you soon, I, I, I, don’t know what, but somehow I will track you down and appear at your door.
I agree with T2, perhaps you can see someone who is a bit more available? I am so very sorry about the horror that you have found yourself in and your response seems to be a normal reaction to pile of shite on top of pile of shite. I can’t even imagine how hard it is to deal with all you are going through. I know that this is probably a crap arse suggestion but if you have any frosties left, have you given thought to surrogacy? I hope my suggestion hasn’t pissed you off, it was only intended with love.
Is there any way to find a peaceful resolution to Other Stuff? Because it’s clear that it’s interfering in the rest of your life. ART aside, there’s enough stress there to bring you down.
I hope you can separate all the issues and consider them individually. Otherwise, you’ll just find yourself going around and around tying them all together. I hope your semi-retired psychologist becomes available. Thinking of you…
I don’t have anything of value to offer nor anything useful to say, but know that I have read your post and that my heart just aches for you both.
I feel your pain, I know this pain.
Have you heard or had a killer cell test? – a biopsy done on day 21
I’m not sure if you have the strength for 1 more however, I can give you a name, a contact and tell you these words in a nut shell.
Greece, donor embryos, 100 cells, airfare + $6,000 for cycle.
Stay strong, I know of people successful on round 14… Its a numbers game as you know!
Im happy to share, Im happy to talk,
stay strong debinmelb has said it all my heart and thoughts are with u and ur beloved just know that i am here for u xxoo
Really don’t have too much to say that others haven’t said. My heart breaks for you and your beloved, and I send you every positive vibe and strength I can. Much hugs and love xx
It’s good that you’re letting it out, here, to your husband and to a psychologist.
If this is not a time to feel the way you’re feeling now, then I don’t know what is. You have every right to grieve.
I’m sorry that Other Stuff is still so ugly and with no end in sight.
Just wanted to touch base with you Lifeslurper and Wobbles and let you know that we’re still thinking of you. There has been nothing to celebrate on this side of Oz either, so the best I can do is say goodbye to this year and look forward to next year unfolding. I don’t know what 2012 will bring but here’s hoping that we are all in for a better year xx
We are missing you and quietly worrying
Sending Love & Light to you & wobbles. Not much but I hope you receive it. Miss You xox
Wherever you are, I hope you and Wobbles find peace and joy with each other this Christmas.
I was just re-reading your post and noticed you have psoriasis. (So does my family). I am wondering if anyone has tested your ANA in the past?
Long time reader and concerned about you.
I hope that you and Wobbles are doing ok and know that there are many folks out there thinking about you both.
Hugs,
Jen
I’ve been following your blog for a year or so now. It has been informative and a great source of inspiration, you are a very strong woman. I am also in IVF hell and about to go down the donor egg route. I wish you well and I hope you have some more frozen embies left to try.
Hey BABS,
I’m with the others (T2, Fobe & Msimmons) and worried about you. Hope you are okay xo